My initial symptoms were my right hand weakness & feeling tired, this was put down to carpal tunnel syndrome and just generally being run down, after a series of tests CT was eliminated so I was then referred to a neurologist.
I had two MRI's and clinical tests and was informed by my neurologist ( Dr Woolmore) that I had aggressive RRMS although he said I was a difficult case to read and was recommended a steroid infusion, the steroids made me feel terrible, I was then told I was fortunate that Tysabri funding had been agreed and it's the best drug out there for me.
From day one the Tysabri made me feel very poor but i was encouraged to persevere. Over the next 12 months I showed no signs of remission and continued to worsen although my neuro seems to think I haven't progressed much!
I then had a precautionary blood test for PML. The result is that I am now JCV positive.
I then had a lumber puncture which turned out to be clear!
I have been drug free for 10 weeks now and have lost all faith in my MS team.
