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| EJC, Treatment with Dr Amir https://thesymmetryforum.com/viewtopic.php?f=9&t=24 |
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| Author: | EJC [ Sat, 24 Nov 2012, 5:05 pm ] |
| Post subject: | Re: EJC, Treatment with Dr Amir |
Unexpected visit to Amir today. Just under two weeks ago Emma had pretty much all her appliances/braces removed as Amir wanted to move her jaw in a slightly different way with a replacement appliance used 3 times daily. To cut a long story short, neuralgia returned last night with vengeance, not as bad as it's been historically, but enough to have us both up at 3am to 5am as well as earlier in the evening and a dose of valium to provide Emma some relief. A quick email to Amir and we were advised to get to him as early as we could today. I got Emma up at 7:30am - I won't need to tell you how tough that is for PwMS! By 11:30am we were leaving Amirs with a brand new bespoke appliance made this morning from a cast taken as soon as we arrived. Normal service resumed, neuralgia now gone again. We went to Emmas Neurologist this week simply to get another MRI scan. I discussed CCSVI and Jaw alignment and he had the nerve to call it all "Snake oil" - I lost it at that point and gave him a piece of mind after which I asked him to explain the chemical make up of Copaxone, which he had been trying to convince Emma to start again. Of course, he couldn't tell me what it was or how it even worked, as they don't know, not even the manufacturer can answer those questions. So I put it to him that it was in fact he who was trying to push "snake oil" or more accurately, trying to convince Emma to take a drug that he had no idea how it worked for a condition that he didn't understand. The meeting ended rather abruptly at that point. Asshole! |
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| Author: | Michele [ Sun, 25 Nov 2012, 3:09 pm ] |
| Post subject: | Re: EJC, Treatment with Dr Amir |
Good for you EJC, it is about time neurologists were reminded about how little they know. Michele |
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| Author: | dave64 [ Sun, 25 Nov 2012, 9:25 pm ] |
| Post subject: | Re: EJC, Treatment with Dr Amir |
Well done Alan and good on you for standing up to the Dinosaur but I guess deep rooted misconceptions and ignorance are difficult things to change. Let's hope that he at least went away and had a think about his support of Big Pharma and what they actually offer. |
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